Emotional support and Palliative care for cancer patients

Authors

  • Sarah Massoud Aldawsari Nursing Technician, Prince Sultan Military Medical City, Riyadh
  • Hailah Hamad Aldubaikhi Nursing Technician, Prince Sultan Military Medical City, Riyadh
  • Manal Hussain Hazazi Nursing Technician, Prince Sultan Military Medical City, Riyadh
  • Badiah Saad Aldosari Nursing Specialist, Prince Sultan Military Medical City, Riyadh
  • Shekhah Abdullah AlDousari Nursing Technician, Prince Sultan Military Medical City, Riyadh

DOI:

https://doi.org/10.29070/gv02py92

Keywords:

Emotional support, Palliative care, cancer patients

Abstract

While advancements in cancer therapy have increased concurrently, there is a greater awareness of the various dimensions of misery endured by individuals with cancer and those who care for them. In order to alleviate these suffering, palliative care physicians, researchers, and advocates have spent the last 50 years learning from and alongside cancer patients. As a result, they have become valuable collaborators with oncology physicians. An interdisciplinary team (IDT) approach, in which members from several disciplines work together to alleviate multidimensional pain and suffering and improve quality of life, is beneficial to patients with terminal illnesses in palliative care. Members of the psychosocial team are essential to the palliative care IDT because they offer knowledge of assessment and treatments for psychological distress that have been scientifically proven to work. This presentation will examine the various aspects of psychological discomfort that patients with advanced cancer may encounter. Effective relationships built on emotional attachment serve as the cornerstone of cancer patients' palliative treatment. Given the configurations and environments of palliative care within health systems, training programs on techniques for building emotional bonds can be offered in order to effectively administer palliative care.

References

Ann-Yi S, Bruera E. Psychological aspects of care in cancer patients in the last weeks/days of life. Cancer Research and Treatment. 2022 Jun 28;54(3):651-60.

Boston P, Bruce A, Schreiber R. Existential suffering in the palliative care setting: an integrated literature review. Journal of pain and symptom management. 2011 Mar 1;41(3):604-18.

Brataas HV, Thorsnes SL, Hargie O. Cancer nurses narrating after conversations with cancer outpatients: how do nurses’ roles and patients’ perspectives appear in the nurses’ narratives?. Scandinavian Journal of Caring Sciences. 2009 Dec;23(4):767-74.

Bray F, Ferlay J, Soerjomataram I, Siegel RL, Torre LA, Jemal A. Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA: a cancer journal for clinicians. 2018 Nov;68(6):394-424.

Breitbart W, Rosenfeld B, Roth A, Smith MJ, Cohen K, Passik S. The memorial delirium assessment scale. Journal of pain and symptom management. 1997 Mar 1;13(3):128-37.

Cameron J, Waterworth S. Patients’ experiences of ongoing palliative chemotherapy for metastatic colorectal cancer: a qualitative study. International journal of palliative nursing. 2014 May;20(5):218-24.

Cain CL, Surbone A, Elk R, Kagawa-Singer M. Culture and palliative care: preferences, communication, meaning, and mutual decision making. Journal of pain and symptom management. 2018 May 1;55(5):1408-19.

Clarke DM, Kissane DW. Demoralization: its phenomenology and importance. Australian & New Zealand Journal of Psychiatry. 2002 Dec;36(6):733-42.

Ewing G, Todd C, Rogers M, Barclay S, McCabe J, Martin A. Validation of a symptom measure suitable for use among palliative care patients in the community: CAMPAS-R. Journal of pain and symptom management. 2004 Apr 1;27(4):287-99.

Fava GA, Sonino N. The clinical domains of psychosomatic medicine. Journal of Clinical Psychiatry. 2005 Jul 7;66(7):849-58.

Fitzgerald P, Lo C, Li M, Gagliese L, Zimmermann C, Rodin G. The relationship between depression and physical symptom burden in advanced cancer. BMJ supportive & palliative care. 2015 Dec 1;5(4):381-8.

Gao W, Bennett MI, Stark D, Murray S, Higginson IJ. Psychological distress in cancer from survivorship to end of life care: prevalence, associated factors and clinical implications. European journal of cancer. 2010 Jul 1;46(11):2036-44.

Hodges LJ, Humphris GM, Macfarlane G. A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Social science & medicine. 2005 Jan 1;60(1):1-2.

Hui D, Bruera E. Integrating palliative care into the trajectory of cancer care. Nature reviews clinical oncology. 2016 Mar;13(3):159-71.

Hui D, Bruera E. The Edmonton Symptom Assessment System 25 years later: past, present, and future developments. Journal of pain and symptom management. 2017 Mar 1;53(3):630-43.

Krikorian A, Limonero JT, Román JP, Vargas JJ, Palacio C. Predictors of suffering in advanced cancer. American Journal of Hospice and Palliative Medicine®. 2014 Aug;31(5):534-42.

LeMay K, Wilson KG. Treatment of existential distress in life threatening illness: a review of manualized interventions. Clinical psychology review. 2008 Mar 1;28(3):472-93.

Martín JM, Olano-Lizarraga M, Saracíbar-Razquin M. The experience of family caregivers caring for a terminal patient at home: A research review. International journal of nursing studies. 2016 Dec 1;64:1-2.

Mehnert A, Brähler E, Faller H, Härter M, Keller M, Schulz H, Wegscheider K, Weis J, Boehncke A, Hund B, Reuter K. Four-week prevalence of mental disorders in patients with cancer across major tumor entities. Journal of Clinical Oncology. 2014 Nov 1;32(31):3540-6.

Mitchell AJ, Chan M, Bhatti H, Halton M, Grassi L, Johansen C, Meader N. Prevalence of depression, anxiety, and adjustment disorder in oncological, haematological, and palliative-care settings: a meta-analysis of 94 interview-based studies. The lancet oncology. 2011 Feb 1;12(2):160-74.

Montgomery KE, Sawin KJ, Hendricks-Ferguson V. Communication during palliative care and end of life: Perceptions of experienced pediatric oncology nurses. Cancer nursing. 2017 Mar 1;40(2):E47-57.

Murtagh FE, Ramsenthaler C, Firth A, Groeneveld EI, Lovell N, Simon ST, Denzel J, Guo P, Bernhardt F, Schildmann E, Van Oorschot B. A brief, patient-and proxy-reported outcome measure in advanced illness: validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS). Palliative medicine. 2019 Sep;33(8):1045-57.

Nakajima N, Kusumoto K, Onishi H, Ishida M. Does the approach of disclosing more detailed information of cancer for the terminally ill patients improve the quality of communication involving patients, families, and medical professionals?. American Journal of Hospice and Palliative Medicine®. 2015 Nov;32(7):776-82.

Nilsson ME, Maciejewski PK, Zhang B, Wright AA, Trice ED, Muriel AC, Friedlander RJ, Fasciano KM, Block SD, Prigerson HG. Mental health, treatment preferences, advance care planning, location, and quality of death in advanced cancer patients with dependent children. Cancer. 2009 Jan 15;115(2):399-409.

Park EM, Deal AM, Check DK, Hanson LC, Reeder‐Hayes KE, Mayer DK, Yopp JM, Song MK, Muriel AC, Rosenstein DL. Parenting concerns, quality of life, and psychological distress in patients with advanced cancer. Psycho‐Oncology. 2016 Aug;25(8):942-8.

Park EM, Stephenson EM, Moore CW, Deal AM, Muriel AC. Parental psychological distress and cancer stage: a comparison of adults with metastatic and non-metastatic cancer. Supportive Care in Cancer. 2019 Jul 1;27:2443-51.

Potash M, Breitbart W. Affective disorders in advanced cancer. Hematology/Oncology Clinics. 2002 Jun 1;16(3):671-700.

Portenoy RK, Thaler HT, Kornblith AB, Lepore JM, Friedlander-Klar H, Kiyasu E, Sobel K, Coyle N, Kemeny N, Norton L, Scher H. The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress. european Journal of cancer. 1994 Jan 1;30(9):1326-36.

Rego F, Nunes R. The interface between psychology and spirituality in palliative care. Journal of Health psychology. 2019 Mar;24(3):279-87.

Robinson S, Kissane DW, Brooker J, Michael N, Fischer J, Franco M, Hempton C, Sulistio M, Pallant JF, Clarke DM, Burney S. Refinement and revalidation of the demoralization scale: the DS‐II—internal validity. Cancer. 2016 Jul 15;122(14):2251-9.

Salmon P, Young B. A new paradigm for clinical communication: critical review of literature in cancer care. Medical Education. 2017 Mar;51(3):258-68.

Satin JR, Linden W, Phillips MJ. Depression as a predictor of disease progression and mortality in cancer patients: a meta‐analysis. Cancer. 2009 Nov 15;115(22):5349-61.

Schultz M, Meged-Book T, Mashiach T, Bar-Sela G. Distinguishing between spiritual distress, general distress, spiritual well-being, and spiritual pain among cancer patients during oncology treatment. Journal of pain and symptom management. 2017 Jul 1;54(1):66-73.

Seow H, Stevens T, Barbera LC, Burge F, McGrail K, Chan KK, Peacock SJ, Sutradhar R, Guthrie DM. Trajectory of psychosocial symptoms among home care patients with cancer at end‐of‐life. Psycho‐Oncology. 2021 Jan;30(1):103-10.

Seccareccia D, Wentlandt K, Kevork N, Workentin K, Blacker S, Gagliese L, Grossman D, Zimmermann C. Communication and quality of care on palliative care units: a qualitative study. Journal of palliative medicine. 2015 Sep 1;18(9):758-64.

Singer S, Das-Munshi J, Brähler E. Prevalence of mental health conditions in cancer patients in acute care—a meta-analysis. Annals of oncology. 2010 May 1;21(5):925-30.

Strang P, Strang S, Hultborn R, Arnér S. Existential pain—an entity, a provocation, or a challenge?. Journal of pain and symptom management. 2004 Mar 1;27(3):241-50.

Ullrich A, Ascherfeld L, Marx G, Bokemeyer C, Bergelt C, Oechsle K. Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients. BMC palliative care. 2017 Dec;16:1-0.

Wise T. Clinical strategies for evaluating the medical patient. Clinical Psychopharmacology. 1986:1-6.

Walker J, Hansen CH, Martin P, Sawhney A, Thekkumpurath P, Beale C, Symeonides S, Wall L, Murray G, Sharpe M. Prevalence of depression in adults with cancer: a systematic review. Annals of oncology. 2013 Apr 1;24(4):895-900.

Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta psychiatrica scandinavica. 1983 Jun;67(6):361-70.

Zabora J, BrintzenhofeSzoc K, Curbow B, Hooker C, Piantadosi S. The prevalence of psychological distress by cancer site. Psycho‐oncology: journal of the psychological, social and behavioral dimensions of Cancer. 2001 Jan;10(1):19-28.

Downloads

Published

2024-09-02

How to Cite

[1]
“Emotional support and Palliative care for cancer patients”, JASRAE, vol. 21, no. 6, pp. 84–89, Sep. 2024, doi: 10.29070/gv02py92.

How to Cite

[1]
“Emotional support and Palliative care for cancer patients”, JASRAE, vol. 21, no. 6, pp. 84–89, Sep. 2024, doi: 10.29070/gv02py92.